Thursday was a busy day. I schelpped 4 kids to visit Sawyer's school. Of course, Sawyer did NOT want to go. Then we got ready to leave, none of the 4 wanted to leave. After that, we all headed to Walmart to pick up school supplies. No one wanted to ride in the buggy, so I was constantly trying to corral four kids. Finally, Turner wanted in. After that, they all wanted to ride. They wanted to eat at McD's in Walmart. $13 later, they were full.
Thursday afternoon, Judson and I took Sawyer for his follow-up cardiology appointment. It went very well, for the most part. Sawyer was a big boy and allowed them to do the EKG and the ECHO. (Previous visits were more like wrestling a steer to get any kind of procedure done) The good news: His pulmonary pressures are normal, around 16! Remember at birth, they were over 100 and the prognosis was not good. The bad news: He has a 'mass' on his heart. It's in the right atrium around the superior vena cava. (If I heard correctly, sometimes your brain doesnt get all the information the first time around) The cardiologist consulted with fellow cardiologist (the good thing about a teaching hospital) and they've decided it was a 'bleed'. (Aka, blood clot) The good news: It doesn't appear to be a tumor. It also does not appear to be restricting blood flow. The bad news: You don't want it to break off and cause problems. You also don't want it to grow and restrict blood flow.
The preferred method of treatment at this point is 1/2 baby aspirin a day. (To hopefully restrict any further growth and possibly dissolve it) Then we will go back in a month and see how it looks. All other treatments are more invasive. (coumadin, heparin,surgery) I told him about a clotting issue that possibly runs in the family. He didn't seem to think that was it. His best guess at what may have happened: The PIC/PICC line that was inserted (actually twice: at birth and after surgery) probably caused a 'bleed'. It's really hard to know how it happened. We just have to deal with its presence. I really like this cardiologist (and the one he consulted with). I trust his advice. So, off we go to get some baby aspirin.
Always, something, isn't it.
Come On Over
18 years ago
3 comments:
I remember all those precious little pictures of baby Sawwee with his little oxygen line on. It seems like so long ago now to me. I'm sure not to you.
I'll pray Jan. I'm glad there was some good news too.
I am praying that everything works out for him.
I can't believe that it has been a year since Turner came home.
Take care,
Kelly
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