31 for 21 Day 7

What did you do when you found out?

We were not like most folks who get 'surprised' with the news.
In fact, I suspect we disappointed many a hospital
social worker when we didn't flinch
at being told the news.

With so many Level II ultrasounds,
we saw all the markers that Sawyer
would most likely be born with Down Syndrome.
Having the karyotype confirmation
did not surprise us.
NOW
I will say
had we not been aware of the news,
the lack of delivery finesse would
have left us pretty empty and scared.
So I totally understand the fear many folks
have with being told their child has Down Syndrome.

BUT
we did not have the time
to mourn or be scared of Down Syndrome.
We were too busy being scared
of Pulmonary Arterial Hypertension.

By the time we got a grip on PAH,
we were so much in love with our little guy
all we could think about
is how do we keep this kid alive.

Many a doctor wrote Sawyer off as not having
more than a year to live.
Before that year was up,
Sawyer had had surgery to repair
his heart.
This surgery also 'cured'
his PAH.
The doctors learned a very important lesson.
(at least I hope they did)

The rest they say is HISTORY.
Sawyer continues to make history.
And we continue to be in awe that God entrusted us
with such a precious gift.